counselling and emotional support

Last reviewed 01/2018

Parents should be advised as to the availability and success of prenatal diagnosis and offered a referral for genetic counselling.

Some important facts are:

  • parents with an affected child need to be informed that there is a 25% risk of having another child with cystic fibrosis
  • an unaffected child has a 66% chance of being a carrier of cystic fibrosis
  • a child of an unaffected sibling has about a 1 in 80 chance of being affected by cystic fibrosis, assuming that the other parent has a population 1 in 20 chance of being a carrier for CF
  • an offspring of an affected mother has a 1 in 40 chance of being affected by cystic fibrosis, assuming that the father has 1 in 20 chance of being a carrier
  • adult males with cystic fibrosis are normally sterile
  • adult females with cystic fibrosis are subfertile